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What’s it all about?

This blog is dedicated to sharing the experiences of a family with the discovery and cooping of a father’s diagnosis of Glioblastoma Multiforme (GBM), an aggressive form of brain cancer without a cure. My goal is to share what my family has had to endure in hopes of better understanding, assisting others in the world dealing with the same diagnosis, and emotional release through words. Only until I faced death the first time at the loss of my best friend I learned that this is the only time we ever really have and make the most of it. I hope I don’t make the same mistakes this time as I did with him.

Thanks for visiting.

James Gose
Bill (left) and a fellow Cast Member at Walt Disney World’s Epcot

3 comments

  1. Thank you for this web page so we can know how things are going without asking Pat and Bill to constantly repeat things. We love all of you!


  2. Dear Bill’s family,

    I have read your diary and can truly empathize with what you’re dealing with. My mom’s story is “Mimi’s story”, linked in the same Virtualtrials webpage as Bill’s – a few below you. Quality of life was a very difficult decision for all of us to come to terms with, but in retrospect, we were very glad for what we had and the comforts we were able to provide and enjoy with her during her remaining life. Cherish your time with Bill as much as you can…take pictures and make videos so you will always have him and his voice with you. I’m not sure what other support you’re getting but one thing we learned was that as GBM progressed, it may become harder for Bill to express himself clearly. We were told by doctors/nurses that yes might mean no and no might mean yes. He might have pain even if he can’t tell you…so they suggested that you watch for other clues (rubbing his head, squinting or wincing like pain makes you do). They also said keep communications simple, ask simple questions…because things can get very confusing for your loved one. And use your best judgement in caring for him – you all know him better than anyone else – go with your gut feelings. We also had a very wonderful hospice group here and they were very supportive and helpful to the entire family. You didn’t mention that service at all in your blog….they might be helpful to all of you as well…not just nursing help, but other care – volunteers to cover if you or Mom need to run errands or you just need some time to rest yourself, volunteers to do errands for you (take advantage, you all need your own strength and energy), spiritual if that’s something you want but even just general counseling and emotional support, plus of course the medical advice and support since they deal with end of life care and have much more knowledge than most general doctors/nurses.

    I am so sorry to hear of your Dad’s illness and sincerely wish all of you much strength, love and peace as you go through this journey together. If I can be of any help to you or just someone who has been there and can just listen, please feel free to contact me. God bless you all –

    Karlee Myers
    karleemyers@gmail.com


  3. Jimmy:
    You probably don’t even remember me, but we do go way back. We share a Grandma…I call her Grandma Bill and she practically helped raise my brother Jonas and I.

    Anyway, thank you for sharing your thoughts and your Dad’s progress on this blog. I imagine it’s not an easy thing and the greatest thing to do all at the same time.

    My thoughts and prayers are with you and your family. All of you are very special to me.

    Love, Audra (Butterworth) Poe



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